The W Family Chronicles

The scoop on C.

Posted on: November 30, 2006

I know many people have most of the details on what’s going on with C but some people don’t.  For those who have been wondering, here’s all of the info!

I think everyone knows we had a c-section 2 weeks early due to my kidney stones.  He was pretty wedged in and my doctor had to use the vacuum a couple of times to get him out.  When he was born, we noticed that his right ear was slightly misshapen.  It looked like an elf ear!  Not a big deal, but a cute little anomaly.  Not long after that I noticed that his head was also slightly flat on one side.  I figured that was due to his uterine positioning and we started repositioning to help it round out.

Fast forward to September (just over 2 months old) and I noticed it was worse…his forehead was beginning to bulge on that side.  The repo didn’t seem to be working and I made an appointment with our pediatrician.  He agreed that there was something going on but wanted to wait.  Said he might benefit from physical therapy but didn’t make a referral as we don’t need one for insurance.  I wasn’t sure what to do…PT can be expensive and I wasn’t sure we had the money to do it.  A friend of mine told me to call the state Early Intervention program and see if they could help.

The state evaluated him with a 50% delay, so PT and play therapy were recommended.  We’ve been doing play therapy for about a month now and are seeing wonderful results.  Physical therapy hasn’t begun yet (don’t get me started on that!) but we expect that to start very soon.

Meanwhile, we’re pursuing a cranial remolding helmet.  We are very lucky to have a Cranial Tech location (CT is considered the gold standard in cranial remolding helmets and some people drive hours or fly just so they can see them) in Charlotte, about 2.5 hours away.  On Monday, we met with them and they did recommend the helmet.  His head is very misshapen, his ears are very asymmetrical in placement, his forehead bulges quite a bit on one side, and there is some asymmetry to his face.  We feel that this is necessary not only for his future self-esteem, but also medically.  This can cause TMJ down the road as well as other problems with the jaws and teeth.  So this coming Monday, we’re going back to Charlotte to have a mold made of his head.  We’ll have to pay $3000 out of pocket and hope that insurance will reimburse us.  The irony of this is that we just bought Donnie a new car that cost less than this helmet will.  We had to revise our car budget after finding out about this, unfortunately!  Two weeks after the mold is made, we’ll go to pick up his helmet.  After that, he’ll go once a week for fit and progress checks.

If you want more details on this, you can google plagiocephaly or torticollis to get some more insight into what we’re dealing with specifically.  We feel very blessed that this is his only real problem and it is VERY fixable!

Colin

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W Family Players

D is the dad, the husband, and the breadwinner. All around nice guy and good at pretty much everything he does. It's disgusting, really. But makes him worth keeping around.

M is the mom, the wife, and the hopeless housekeeper. At least the kids' heads haven't fallen off yet. Beyond that, she sucks at the "stay at home" thing. Oh, and she's the blogger.

J is the big boy. Born October 11 2002, he is in kindergarten and loves it. Now 6 years old, and too smart for his own good. Talks a lot but extremely entertaining.

C is the little boy. Born June 26, 2006, he went through a lot in his first year but is doing just fine now. The only blond in the family, so his paternity is routinely questioned by rude strangers.

V is our baby girl. She is brand new and arrived in January 2009. So far everything is going well. We're thrilled to have added the final piece to our family puzzle. And yes, she WILL be the final piece!

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